Tag: Fibromyalgia

Fake it until you make it – a coping with Fibromyalgia

Fake it until you make it.  This is a mantra I find myself repeating over and over.  Especially when I wake up feeling less than fabulous.

There are mornings when I wake-up or rather get up and know that I have had little sleep, am so stiff and awkward that I walk like a puppet.  I stumble downstairs to get painkillers and put on the kettle so I can ease myself into the day. This is what it is like for me coping with fibromyalgia.

I am a very positive person so feeling less than great is hard for me.  I try to focus on the good things in life and not on fibromyalgia, arthritis and the other things that are my shadow.

It would be so easy to simply stay in my lovely fluffy gown and binge watch Netflix.  You really can 3 or 4 episodes without realising the passing of time.

Don’t wallow!

I am determined to not wallow (although there are days that I do).  My lipstick is my companion, it reminds me that you can fake it until you make it.

I recently read something that I really related to.  It was a list of things only people with chronic conditions would understand.  One of these was sitting on the bed and wondering if you really needed to shower and wash your hair.  Yes, this is a real thing.  It takes energy to do this and it causes more pain.

Fake it until you make it

I keep trying and so I wanted to share how I fake it until I make it.  How I push myself  to get going and ultimately how I normally enjoy myself once I do make it to an event.

Realistically each time I do this it does make me very tired the next day, but the joy of getting up and getting glamorous is worth it.

Off to a Fashion Show – Faking it all the way!

A little while ago I was invited to a fashion show at Bellissimo in Galway as an ITWBN blogger.  The show featured fashion from the fabulous Olivia Danielle boutique.  It was one of those days when I really had to push myself.

I got dressed in my new dress from The Curvy Gurl, accessorised and put on my make-up.  Just before leaving I got my photo taken for the obligatory Instagram/Facebook post.

Details of my outfit as requested:

Dress – The Curvy Gurl – Newry (I bought my dress at the Ireland’s got Curves show but they have a fab online shop)

Cardigan: Matalan – old as the hills but a firm favourite as it is my favourite colour

Shoes: Ballet flats from Debenhams

Necklace:  A gift from my sister!

I was also extremely overwhelmed and humbled by the response to a simple social media post. Hundreds of likes, loves and comments all which made me feel better about myself.  I am struggling with weight gain at the moment due to medications and other factors and being told I look good certainly spurs me on to try even harder.

This is how I know that Faking it until you make it works for me.  Looking the best I could already put me in a brighter mood and going out distracted me from pain and tiredness.

I know that there are many people out there, and possibly reading this that are in a position where faking it isn’t always possible.  So this is my call to ask people to understand when your friend with a chronic condition like fibromyalgia says sorry she can’t make it.  I bet she tried really hard. She is coping with Fibromyalgia.

Thank you so much for reading.

Kerry xx

 

Using a bit of tech to keep me more focused on diabetic me

I am a diabetic.  Not a very well behaved one I accept. I sneak the odd cake or chocolate and justify it by saying that I will walk it off.  But, perhaps it is time to keep a closer eye on all things diabetic.

I was diagnosed as a diabetic in 2012 and I have worked hard to change my lifestyle.  For me this was the correct choice.  Rather than accept that I would be on drugs and ultimately injecting insulin, I wanted to see what I could do myself.  Using exercise and watching what I ate (and drank) I have managed to keep it under control as far as possible..

Unfortunately for many of us, despite being careful about what we eat, exercising and drinking lots of water, the disease marches on.

When I was contacted through my blog by Ascensia to ask if I would review their new Contour Next One blood meter I was intrigued.  I love tech and use apps on my phone to remind me of just about everything. There is a list app, pill reminder apps, calendar apps, shopping apps and more.  I love them, they keep me straight and also help with the brain fog (associated with Fibromyalgia). If you would like to try it you can get a free meter here.

Self Management

I have learned that with all my conditions self management is the key.  I am the only one who knows me as well as I do.  Talking the driving seat in managing my diabetes I believe is essential.

Use of mobile phones for blood glucose monitoring can help patients manage their condition: According to an editorial piece published in the Journal of Diabetes Science and Technology, the integration of blood glucose monitoring technology with mobile phones can provide additional convenience and ease-of-use for people with diabetes by allowing blood glucose monitoring data to be automatically captured and analysed in near real time, helping people with diabetes manage their blood glucose levels.

This is true in my case.  It is exciting to think that the use of tech in the form of mobile phones can actually lead to better diabetes management, and ultimately better glycemic control.  Since being diagnosed I have always aimed to reduce my hb1ac.  I get this measured every six months and reward myself with a treat (like a manicure) if I have maintained or reduced my levels.

The Contour Next One

The Contour Next One is, at first glance similar to any other system.  The meter is really neat, but the difference is in the interface with the app on your smart phone.  I was a little intimidated about the prospect of setting up the app and getting it all synced and ready but, honestly it was so easy.  Testing is much the same as normal, but tracking them becomes so easy.

The wireless meter simply sends your reading to your phone – it’s that simple.  This is an ideal system for someone who is testing regularly and monitoring.  The system allows you to log what you eat, whether you are testing before or after food.  There is also a cool system where you can either use smart testing (set up for insulin users, and non-insulin users) or you can set up your own reminders.

At this point I am not  insulin dependent.  I do know a good few friends and family who are and I would certainly recommend this system.

Next week is my visit to the practice nurse who manages the diabetes programme. I will have my phone with me and be ready to show my trends, my readings, and hopefully get a good report card!

This is a sponsored post, and I was given the meter, however the reporting is totally my own and I can honestly say that I do like the system and will be using it going forward.

Thank you so much for reading, and if you are a diabetic and would like to chat about it with a fellow diabetic please feel free to get in touch.

Kerry x

Why I started wearing a Fitbit when I am probably not very fit at all?

 

I wear a blue Fitbit almost every day and have done so for the last 8 months.  My Dad asked me if I actually liked it when he saw me checking it over and again and commenting on how little or much I had walked.  Don’t let it rule your life he said.  I really love it!

fitbit fabuliciousfifty

Let me back track a little.  Regular readers to my blog will know that I came to fitness very, very late in life.  Like so late that I bought my first pair of trainers when I was on the very wrong side of forty.

I really do regret not discovering the joy of walking earlier in life, but I try to make up for it now.

One thing you must know before we get into all the statistics etc. is that I don’t walk very fast at all.  I also limp and sometimes walk like a ‘constipated tortoise’.  I have fibromyalgia and arthritis and it can all be a little painful.  Despite this however I strongly believe that the more I walk the better I feel.  Walking clears my mind and when it takes place it nature it fills my soul.  It also eases out all the creaks and actually makes me feel better.   In addition there are also all the health benefits that everyone talks about like weight loss and better muscle tone.

Last December I was visiting family in Dubai.  My big treat is a visit to an Arabic restaurant so off we went and ordered all these yummy little dishes for sharing.  I noticed my brother-in-law was wearing a bracelet.  I am very outspoken so I asked him why he was wearing a bracelet.  ‘It is a Fitbit.’   I really didn’t have a clue and as I didn’t move in fitness circles despite my love of walking I hadn’t even heard of the concept.  He patiently explained it all and told me how it worked.  He is really fit and walks, runs and plays squash.

I thought nothing of it until the next day when I was presented with a little bag and opened it to find my very own Fitbit.  I was honestly quite speechless – what a generous gift had been given to me to encourage my own fitness journey.

I strapped it on and was ready to go.  There are a number of things I learnt from wearing a Fitbit and because of these I would encourage everyone who can to try it – or any other fitness monitor.

This is what I have learnt about my Fitbit

  1. That it is possible to do under a thousand steps a day if you are in an office and don’t move around much.
  2. It takes around 2500 steps to walk from my house to the doctor – so there and back is a great way to ensure I get my steps in.
  3. I feel grumpy and disgruntled when I don’t walk.
  4. Looking at a Fitbit which shows under 2000 steps is a great motivator to get my trainers on and get moving.
  5. That it is possible to walk over 10 000 steps before breakfast when I participated in the 5km Darkness into Light walk recently.  I also exceeeded myself at the Heart of Galway walk where I logged up 14 000 steps.
  6. That my sweet place is around 6000 steps – after this I suffer quite a bit with pain. I am now trying to push my speed a little instead of going further.
  7. I have learnt to use the Fitbit to pace myself and prevent myself from getting overtired. For example if I am going into town and know I am going to be pounding the pavements I might drive or get a lift to the station.  I have no problem walking the 2000 steps to get there, but the prospect of walking 2000 steps home when I am literally crying with pain and exhaustion isn’t a good idea.

A new introduction to the Fitbit app is a little chart which shows how many hours of the day you have been active.  This is really cool and a big wake-up call.  You get a little red dot for each waking hour you do over 250 steps.  It is a really simple but important reminder to get moving.  Take a break, stretch your legs and move away from the computer.  Although it is always good to log between six and 10 000 steps a day it is better to be active throughout the day rather than doing the majority of steps in one big burst.

My Fitbit does all sorts of other things too.  It measures my sleep.  It is really interesting to see if you are in fact getting a good night.  The app – on your phone where you can view all the data from the device shows periods of restfulness and periods of being awake.  When I first started wearing it I was rarely getting a decent 8 hours.  Now I often get those restful hours so necessary to keep smiling.

I also love the little virtual rewards – badges that you get for reaching milestones.  It is always nice to get a pat on the back!

I hope I can motivate other people like me (who might be overweight, unfit and battling with pain) to get moving.

Thank you for reading – I am off to get my Fitbit off the charger and go for a walk.

Kerry x

Be Brave – take the first step

Be brave, take the first step

Being brave is huge!  It means different things to different people really but it is really a very powerful emotion that can propel us forward in a really good and positive way.

What does brave mean to you?

For some people attending an event or a function is brave. For others it might be attempting something that they never thought they could do.  We all have our comfort zones and when we take a step outside of this lovely comfortable place we are being brave.  For me it is stepping out into the unknown.

I am being really courageous this year.  Due to my health, I have had to start again.  Literally.  Imagine almost 52 and having to find a new career which will fit in with my current life.  It isn’t easy, but I am reading and learning and hopefully will be able to work part time very soon.

I have also had to be extremely brave and face some of my exercise demons.

This time last year I was living in Westport, working as the Head of Marketing for a financial services company and generally living it up.

Now my life has changed and I am living in Galway and trying to get my body as strong as possible in ways I can control.  I think this is really important as I cannot completely control the arthritis or fibromyalgia (never mind the other issues), but I can control my fitness levels.

I was brave in February when I did a 10km walk for charity.  I felt this way again when I did the Darkness into Life walk earlier in May.  I felt terribly brave when I went to my first yoga class.  Granted it was a yoga class for people with joint pain, but it was still hard to walk into a room and realise that you might be the biggest person in the class and more likely the least flexible person.

Fast forward a few weeks and I am lying on my back with my legs up against the wall, and trying various poses.  It is still a long way from the downward facing dog, but I am proud that I am taking these little brave steps.

Every day we have a choice, to be brave and take that step out of the comfort zone or stay cuddled in the warmth of the known.

I do both.  One thing I have learned though is that every time I take a brave step, the reward is there.  It isn’t always immediate, but it does come.

Please feel free to stop by and tell me your stories about being brave.  It honestly doesn’t matter how small the step, it is a step in the right direction.

Thanks for reading

Kerry x

 

Bellissimo – Everyone has a right to feel lovely

Bellissimo translated into English means lovely.  I strongly believe that no matter where we are in our lives we all should feel lovely.  Sometimes that comes about due to some kind words but sometimes it rests on us to make ourselves feel lovely no matter what is going on in our lives.

Bellisimo pretty mermaid nailsI know for me having my nails done is a big treat.  Due to some of the auto-immune diseases I have and some of the drugs I need to take, my nails are brittle, ridged and dented.  One has a fault and it cannot grow.  Every little millimetre it grows just causes a vertical split.

One of the few things that helps is having a manicure and if I go all out and have a Shellac (two-week manicure) it kind of holds my nails together.  And of course makes me feel lovely.

I was treated to a beautiful ‘mermaid’ themed shellac manicure at a blogger pamper evening held at the very aptly named Bellissimo salon in Galway.  My comment – these nails look so good I might have to scratch someone just to show them off.  Of course there might be other ways of showing them off too.

It was such a fun evening, hanging out with ITWBN bloggers having manicures and pedicures while eating delicious food supplied by the g Counter.  Honestly it was a bit like a grown-up slumber party with lots of giggling and laughing as we had the run of the salon for the night.

Trying on a long glamours dark wig!The biggest laughs of the evening came about when we started trying on wigs.  There were shrieks of laughter as we transformed ourselves into different characters by simply changing our hair.  Loads of giggles.  Wigs however are a medical necessity for many women.

A couple of years ago when I started on Methotrexate to treat arthritis a lot of my hair fell out!  I have always been quite proud of my hair and I can tell you I panicked.  Hair wash day became worry day as the plug hole filled and each stroke of the brush meant less hair on my head.

Thankfully I didn’t loose all my hair, and by using vitamins and other tricks and techniques (which you can read about here), I was able to get back on track.  I regularly trimmed my hair and waited hoping it would grow back.

Many many woman are not as lucky.  Various conditions and drug programmes result in thinning hair leaving woman feeling less lovely than they should be.

As we clowned around in the wig room at Bellissimo I couldn’t help thinking how important wigs are to so many people.  Many of the wigs available look so good, you wouldn’t realise that they were exactly that.  These wigs are well made and although synthetic would make anyone look fabulous – even if they were simply having a bad hair day.

I spoke to  Mike and Dympna our Bellissimo hosts who explained that because the salon was registered with the HSE (Ireland’s health service), there was a contribution that could be claimed against the purchase of a wig if hair loss was medically related.  The staff is fully informed and are happy to help anyone in a confidential way.   You can also have a look at the info on the website. I can promise you that anyone leaving the salon would feel fabulous!

Bellissimo in Galway is a simply gorgeous venue.  I really couldn’t think of a better name for a salon that makes woman feel lovely!

Thanks to the staff and the lovely ITWBN bloggers for having a pretend slumber party with me.  I felt Bellissimo going home.

Thanks for reading.

Kerry x

 

Infused fruit water and a post Easter cleanse

Fruit waterToday I am drinking a jug, or two of infused fruit water.

I had a lovely Easter Weekend, but I can honestly say that I ate too much.  Too much chocolate (is that such a thing?).  Too much dinner, and even for me too much to drink.

It is ok to treat yourself once in a while, but I do tend to pay the price with increased pain in my fibromyalgia spots, headaches and a general feeling of blah!  Not to mention bloating.

Today I am steadily working my way through 2 litres of infused fruit water.  My recipe uses a lemon (unwaxed), a good few slices of pineapple (great for arthritis and joint pain), a quarter cucumber (great for flushing out toxins) and a good few handfuls of mint.

There are loads of different recipes – I tend to play with how I am feeling and what I have in my fridge.  Have a look on Pinterest for some other ideas.

It is really easy simply chop and then top up the jug with filtered water if possible.   Try and let it infuse for at least an hour or even overnight.  I top up the jug and aim to drink two jugs – around 8 glasses throughout the day.

It is a good idea to do this on a day when you can stay close to home because you will be running (if you know what I mean?).

The one thing I can promise you is that you will feel better for it.  Your skin will glow a little and you might even loose a kilo!

Another reason for my regular return to fruit water is the medication I take.  Although we need medication for some things, it is a bit toxic and there is no harm in flushing your system now and again.

Fruit water was one of the first blog posts on my little blog and something I return to on a regular basis.

The day is almost done and I am already feeling better.

Thanks for reading and let me know if you take up a fruit water challenge.

Kerry x

Life Audit: Where am I now?

Honour the place between no longer and yet.

 

I know I have been a bit quiet and there has been a bit of a gap between blog posts.  That is because I have been doing a life audit.

Early in December I took sick – a combination of things.  It was a real large bump in the road as I realised that I could no longer work full-time.

I have been working since I turned 16.  I had a Saturday job in a shoe store and then worked my way through college.  After graduating I started working and to be honest I have never stopped.  I even cut my maternity leave to a couple of weeks as I was working for myself.

Not working has been quite some adjustment, and something that has taken some time to get used to.  I love being busy and really relish a busy mind.  My body unfortunately doesn’t agree.  A recent diagnosis of Fibromyalgia on top of the other health issues I have been fighting was literally the straw that broke the camel’s back.

So what have I been doing?

My quote this week says it all really.

Honour the place between no longer and yet

I would really like to thank my friends and family who have been incredibly supportive.  They have guided me to take stock.  To do a life audit.

What can I do, and what can’t I do.  What skills do I have and what skills can be transferred.  One friend told me to consider myself a client and look at myself as a product.  What are the good things about me and where are my weaknesses.  I have been doing just that, taking stock and doing a life audit of myself.  Figuring out what I really want and how to achieve it.

It takes some time to get used to what you no longer have to do.  I finally switched off my morning alarm and am letting myself wake up naturally.  I am still a morning person, but it is a relief not to be wakened by beep beep beep at 6.30 in the morning.

I am also taking care of myself.  Nice long walks and time set aside each day for meditation and learning. (read about my very long walk here)

Of course my active mind is exploring new opportunities.  I have a few ideas I am playing with in my head and hope that I will find some great opportunities to volunteer in the future.  I am excited as my knowledge grows and hope to use my new skills in a part-time capacity in the future.

For now though I am in the middle – honouring the place between no longer and yet.

I sincerely want to thank everyone that reads my blog and gives me feedback.  The one thing that I have realised is that I love blogging and will continue to blog and hopefully inspire.

 

Thanks for reading

Kerry x

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